patiently waiting.
Ryan and I went to another doctor visit yesterday with our 18 week intensive ultrasound. They measured every bone in the body, checked out every organ and confirmed that things were continuing to digress. The cystic hygroma has grown to an astonishingly large size, the hydrops have filled every cavity of the body and are now permeating the skin and there appears to be heart and brain problems. The baby is so swollen to the point that they believe it’s skin can’t stretch any further out (once the water has filled every cavity and completely permeated the skin, it will then fill the heart and lungs, causing the baby to die). They are almost positive that the baby has Turner’s and with all that fluid, a multitude of other problems. We asked the technician how it’s possible that with the amount of stress on the body how she could still be alive. She said she asks herself that every day with so many patients with surreal circumstances. As of right now the heart is continuing to beat perfectly, which makes the timeline of when she will actually pass hard to determine. However, the doctor has asked us to come in every two weeks now to check for a heartbeat and also said he would be shocked to see us go longer than four more weeks.
Despite the awful news and the incredibly long visit, we left feeling relieved and still a bit numb. We realize that we are just continuing to wait patiently until we actually do miscarry, but with somewhat of a timeline (despite it’s certainty) it allows us to feel like we know something. They made sure to explain to us that the baby could not live outside of the womb in these conditions, and that we needed to begin to wrap our minds around that. On the flip side, despite all their knowledge and predictions, God is still in control. It’s encouraging in one sense to remember that God has this entire situation already planned out, but also frustrating not knowing what his plans are. He could decide to take the baby in the time frame given by the doctors, or have us wait until the very end, or miraculously heal the baby at the last second and give us the child we so desperately want. Even if he does not decide to save this baby, we are completely at peace with that and will just pray that our next pregnancies are problem free.
Thank you to everyone for your continued encouragement, prayer and love. We know that we would not have been able to be as strong and faithful without it. As always, we will continue to keep you updated!

Oh Danielle, I am so sorry to hear that things have only gone down hill. I will be thinking of you and your hubby.
I love you guys and will continue to pray and believe that God is in control. You are amazing – can’t wait to see you…soon I hope.
i love you danielle, thank you for writing and sharing these updates…wish i could snuggs with you tonight!
We are all praying for you and Ryan. Awhile ago I sent this information to my church. Your guys are on their prayer chain. We love you and I wish I knew the right things to say, but what can I say, to make this better?..nothing, but just know we love you. I talked to my mom, and she wanted me to pass on her prayers to.
Danielle,
In addition to prayign for Kate today in MOSAIC this morning I related what was happening in the Axtell home. I read your latest journal entry and we prayed for you three. Your words were amazing, your faith is incredible, our God is here.
- James
I love you both. My prayers are with you.
So sorry to hear that you are going through this. I will pray that God will continue to provide you the peace that you already seem to have throughout this process.
Praying for you guys always… Haven’t and won’t stop. Jay and I are here if you need anything…
Jess & Jay
Danielle,
Thank you so much for sharing this difficult time with us. I have been praying for a miracle ever since I heard. I will keep praying… if you need anything, please let me know!
I pray often for you guys. Your courage and confidence in God in spite of your circumstances is such a powerful example to me. I wish more people could know your story and courage and trust in God. Thank you. Thank You. Thank You.
You all have been in my thoughts and prayers … and will continue to be. On my knees for you both ….
Your faith is an incredible testimony to everyone who reads this. We love you guys. We’ll keep praying.
Praying for you guys!
Mary Benjamin
I just saw a link to this page on Lauri Barkman’s facebook page. She is so sweet! Her birthday is tomorrow and her Birthday wish is that everyone pray for at least 5 min. tomorrow for several families in our church going through heart wrenching things. I sing on the praise and worship team every so often for Rhythm and love Cornerstone and want you both to know that I am standing in the gap for you two as well and will be praying! Cornerstone has changed my life tremendously in the last year and I was just baptized June 25th and I want you both to know that your service at Cornerstone is all tied in with that. I will be praying for your sweet baby and for God’s hand to be on all 3 of your lives in this time of waiting. I start nursing school this Fall and my passion is to work with babies so this truly touches my heart. I am believing for a miracle but most importantly for God’s will and strength for both of you!
Your sister in Christ,
Bridget
Danielle, your family here in WA (just like your families in AZ & CA) are praying for your situation. Thanks for allowing us to share in this struggle with you. Hope things are well with you and Ryan.